HIPAA Notice

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HIPAA Notice

THIS NOTICE DESCRIBES HOW YOUR MEDICAL INFORMATION MAY BE USED AND DISCLOSED AND HOW YOU CAN GET ACCESS TO THIS INFORMATION.  PLEASE REVIEW IT CAREFULLY.

This Notice of Privacy Practices is mandated by the Health Insurance Portability and Accountability Act of 1996 (“HIPAA”).  It describes how we may use and disclose your protected health information to carry out treatment, payment or health care operations and for other purposes that are permitted or required by law.  It also describes your rights to access and control your protected health information.  “Protected health information” is information about you, including demographic information, that may identify you and that relates to your past, present or future physical or mental health or condition and related health care services.

We are required to abide by the terms of this Notice of Privacy Practices.  We may change the terms of our notice at any time.  Any such new notice will be effective for all protected health information that we maintain at that time.  Upon your request, you may obtain any revised Notice of Privacy Practices by calling us and requesting that a revised copy be sent to you in the mail or asking for one at the time of your next visit.

  1. Uses and Disclosures of Protected Health Information

Uses and Disclosures of Protected Health Information Based Upon Your Written Consent

Your protected health information may be used and disclosed by eSupport Health (“ESUPPORT”) and others outside ESUPPORT that are involved in your care and treatment for the purpose of providing health care services to you.  Your protected health information may also be used and disclosed as necessary to pay health care bills and to otherwise support the operation of ESUPPORT.

Set forth below are examples of the types of uses and disclosures of your protected health care information that ESUPPORT is permitted to make.  These examples are not meant to be exhaustive, but rather to describe for you the types of uses and disclosures that may be made by ESUPPORT.

Payment:  Your protected health information may be used, as needed, to obtain payment for your health care services.  For example, obtaining approval for a hospital stay may require that your relevant protected health information be disclosed to obtain approval for the hospital admission. 

Healthcare Operations:  We may use or disclose, as needed, your protected health information in order to support the normal business activities of ESUPPORT.  Examples of these activities include, but are not limited to, quality assessment activities, employee review activities, training, licensing, and conducting or arranging for other business activities.

We also may need to share your protected health information with certain of our “business associates” or other third parties that perform various activities (e.g., billing, coordinating care, transcribing records) for ESUPPORT.  Whenever an arrangement between ESUPPORT and a business associate involves the use or disclosure of your protected health information, we will have in place the legally required safeguards to protect the privacy of your health information.

Uses and Disclosures of Protected Health Information Based upon Your Written Authorization

Other uses and disclosures of your protected health information will be made only with your written authorization, unless otherwise permitted or required by law as described below.  You may revoke your authorization, at any time, in writing, except to the extent that ESUPPORT has taken an action in reliance on the use or disclosure indicated in the authorization. 

Other Uses and Disclosures That May Be Made and to Which You May Agree or Object

In the circumstances listed below, you may agree or object to the use or disclosure of the protected health information in the manner described.  In the absence of agreement or objection, ESUPPORT may, using professional judgment, determine whether the disclosure of health information is in your best interest.  If such a determination is made, only the protected health information that is relevant to your health care will be disclosed. 

Others Involved in Your Healthcare:  Unless you object, we may disclose to a member of your family, a relative, a close friend or any other person you identify, your protected health information that directly relates to that person’s involvement in your health care.  If you are unable to agree or object to such a disclosure, we may disclose such information as necessary if we determine that it is in your best interests, based on our professional judgment.  We may use or disclose protected health information to notify or assist in notifying a family member, personal representative or any other person that is responsible for your care of your location, general condition or death.  Finally, we may use or disclose your protected health information to an authorized public or private entity to assist in disaster relief efforts and to coordinate uses and disclosures to family or other individuals involved in your health care.

Emergencies:  In an emergency treatment situation, we may have to use or disclose your protected health information in a context in which consent for the release of information has not already been given.  If this happens, ESUPPORT will try to obtain your consent to the release of information as soon as reasonably practicable after the delivery of the treatment.  If ESUPPORT is required to treat you and has attempted to obtain your consent but is unable to obtain your consent, it may still use or disclose your protected health information to treat you.

Other Permitted and Required Uses and Disclosures That May Be Made Without Your Consent, Authorization or Opportunity to Object

There are other circumstances in which we may have to use or disclose your protected health information, even without your consent or authorization.  These situations include:

Communication Barriers:  If ESUPPORT attempts to obtain consent from you but is unable to do so due to substantial communication barriers and ESUPPORT determines, using professional judgment, that you would consent to the use or disclosure under the circumstances, we may use and disclose your protected health information.

Disclosure Required By Law:  We may use or disclose your protected health information to the extent that the use or disclosure is required by law.  The use or disclosure will be made in compliance with the law and will be limited to the relevant requirements of the law.  You will be notified, as required by law, of any such uses or disclosures. 

Public Health:  We may disclose your protected health information for public health activities and purposes to a public health authority that is permitted by law to collect or receive the information.  The disclosure will be made for the purpose of controlling disease, injury or disability.  We may also disclose your protected health information, if directed by the public health authority, to a government agency that is collaborating with the public health authority. 

Communicable Diseases:  We may disclose your protected health information, if authorized by law, to a person who may have been exposed to a communicable disease or may otherwise be at risk of contracting or spreading the disease or condition.

Health Oversight:  We may disclose protected health information to a health oversight agency for activities authorized by law, such as audits, investigations, and inspections.  Oversight agencies seeking this information include government agencies that oversee the health care system, government benefit programs, other government regulatory programs and civil rights laws. 

Abuse or Neglect:  We may disclose your protected health information to a government authority that is authorized by law to receive reports of child abuse or neglect.  In addition, we may disclose your protected health information if we believe that you has been a victim of abuse, neglect or domestic violence to the governmental entity or agency authorized to receive such information.  In this case, the disclosure will be made consistent with the requirements of applicable federal and state laws.

Food and Drug Administration:  We may disclose your protected health information to a person or company required by the Food and Drug Administration to report adverse events, product defects or problems, biologic product deviations, track products; to enable product recalls; to make repairs or replacements; or to conduct post marketing surveillance, as required. 

Legal or Administrative Proceedings or Investigations:  We may disclose protected health information in the course of any judicial or administrative proceeding or investigation, in response to an order of a court or administrative tribunal (to the extent such disclosure is expressly authorized), in certain conditions in response to a subpoena, discovery request or other lawful process or request. 

Law Enforcement:  We may disclose protected health information, so long as applicable legal requirements are met, for law enforcement purposes.  These law enforcement purposes include requests:  (1) pursuant to legal processes or as otherwise required by law; (2) for limited information for identification and location purposes; (3) pertaining to potential victims of a crime; (4) relating to suspicion that a death has occurred as a result of criminal conduct; (5) in the event that a crime occurs at ESUPPORT; or (6) relating to a medical emergency (not at ESUPPORT) and it is necessary to alert law enforcement regarding a potential crime. 

Coroners, Funeral Directors, and Organ Donation:  We may disclose protected health information to a coroner or medical examiner for identification purposes, determining cause of death or for the coroner or medical examiner to perform other duties authorized by law.  We may also disclose protected health information to a funeral director, as authorized by law, in order to permit the funeral director to carry out his/her duties.  We may disclose such information in reasonable anticipation of death.  Protected health information may be used and disclosed for cadaveric organ, eye or tissue donation purposes.

Threat to Public Safety:  Consistent with applicable federal and state laws, we may disclose your protected health information, if we believe that the use or disclosure is necessary to prevent or lessen a serious and imminent threat to the health or safety of a person or the public.  We may also disclose protected health information if it is necessary for law enforcement authorities to identify or apprehend an individual. 

  1. Your Rights

Set forth below is a statement of your rights with respect to your protected health information and a brief description of how you may exercise these rights. 

You have the right to inspect and copy your protected health information.  This means you may inspect and obtain a copy of protected health information about you that is contained in a designated record set for as long as we maintain the protected health information.  A “designated record set” contains medical and billing records and any other records that ESUPPORT uses regarding your care. 

Under federal law, however, you may not inspect or copy the following records: psychotherapy notes; information compiled in reasonable anticipation of, or use in, a civil, criminal, or administrative action or proceeding, and protected health information that is subject to law that prohibits access to protected health information.  In some circumstances, you may have a right to review a decision that denies you access to information.  Please contact our Privacy Officer if you have questions about access to your health information. 

You have the right to request a restriction on the use or disclosure of your protected health information.  This means you may ask us not to use or disclose any part of your protected health information for the purposes of treatment, payment or healthcare operations.  You may also request that any part of your protected health information not be disclosed to family members or friends who may be involved in your care or for notification purposes as described in this Notice of Privacy Practices.  Your request must state the specific restriction requested and to whom you want the restriction to apply.  However, ESUPPORT is not required to agree to a restriction that you request.  If ESUPPORT believes it is in your best interest to permit use and disclosure of your protected health information, your protected health information will not be restricted.  If ESUPPORT does agree to a requested restriction, we may not use or disclose your protected health information in violation of that restriction unless it is needed to provide emergency treatment for you.  With this in mind, please discuss any restriction you wish to request in advance with the Privacy Officer listed below. 

You have the right to request to receive confidential communications of your protected health information from ESUPPORT by alternative means or at an alternative location.  We will accommodate reasonable requests.  We also may condition this accommodation by asking you for information as to how payment will be handled or specification of an alternative address or other method of contact.  We will not request an explanation from you as to the basis for the request.  Please make such requests in writing to our Privacy Officer.

You may have the right to have ESUPPORT amend your protected health information.  This means you may request an amendment of protected health information about you in a designated record set for as long as we maintain this information.  In certain cases, we may deny your request for an amendment.  If we deny your request for amendment, you have the right to file a statement of disagreement with us and we may prepare a rebuttal to your statement and will provide you with a copy of any such rebuttal.  Please contact our Privacy Officer if you have questions about amending your medical record.

You have the right to receive an accounting of certain disclosures we have made, if any, of your protected health information.  This right does not apply to all disclosures; in particular, it does not apply to disclosures for purposes necessary to carry out treatment, payment or healthcare operations as described in this Notice of Privacy Practices.  It excludes disclosures we may have made to you, you, for a facility directory, to family members or friends involved in your care, or for notification purposes.  The right to receive this information is subject to additional exceptions, restrictions and limitations.  We also are required to notify you following a breach of your health information, if that information is unsecured.

  1. Complaints

You may complain to us or to the Secretary of Health and Human Services if you believe your privacy rights have been violated by us.  You may file a complaint with us by notifying our Privacy Officer of your complaint.  We will not retaliate against you or you for the filing of such a complaint.

You may reach our Privacy Officer at [email protected], who will provide further information about this Notice and the policies and procedures set forth herein.

Mary Rouvelas, JD

Senior Counsel, American Cancer Society Cancer Action Network

Mary is Senior Counsel to the American Cancer Society Cancer Action Network (ACS CAN). She created and directs the Judicial Advocacy Initiative, managing law firms that donate pro bono public policy work to ACS CAN. The initiative currently has nine multinational firms working on health issues ranging from access to care to tobacco control. Mary also serves on the Activism Advisory Committee for the National Multiple Sclerosis Society (NMSS), which advises the NMSS’s Chief Executive Officer on how to use public policy to change the lives of people affected by MS. Mary graduated magna cum laude from Wellesley College, and earned her Juris Doctor from University of Virginia School of Law. She is admitted to practice law in Virginia, the District of Columbia, the US Courts of Appeals for the Fourth and DC Circuits, and at the US Supreme Court.

Victoria M. Leavitt, Clinical Director

Chief Scientific Officer (CSO)

Vicky is a neuropsychologist specializing in the psychological and cognitive symptoms of MS. For over ten years, Dr. Leavitt’s research has focused on symptoms that affect quality of life for people living with MS, including fatigue, cognitive impairment, depression, anxiety, and loneliness. She also studies neural network alterations in MS.

In 2018, Dr. Leavitt received a grant from the National Multiple Sclerosis Society to support a clinical trial of eSupport. With enough rigorous trial evidence supporting the benefits of online support groups, we hope to move from a world in which we recommend support groups to one in which we prescribe support groups.

Dr. Leavitt is an assistant professor in the Department of Neurology at Columbia University Irving Medical Center. She has received grants from the National Institutes of Health, the United States Department of Defense, and the National Multiple Sclerosis Society.

Vicky earned a Bachelor’s of Science in Human Development from Cornell University in Ithaca, New York, and received her Ph.D. from the City University of New York.

Bill Zeman

Chief Developer

Technology leader with 20 years of experience in website development, content management systems and database applications. Bill has founded companies and served as CTO, including for two Scott Galloway startups, L2 (acquired by Gartner for $134M in March 2017) and Section4 (also known as Prof G) through January 2020. As founding CTO of Section4, a video-focused business media startup, Bill helped set the strategic business direction and participated in leadership decisions. He also designed and implemented the full-stack content-delivery solution for videos, podcasts and articles. He implemented best-of-breed stack components to keep costs to a minimum with high flexibility and maintainability, featuring a headless Wordpress CMS, React frontend, and AWS, JWPlayer, Stripe, Zoom, and hubspot integrations. Bill holds a B.A. from Brown University.

Jamie Tobias

Head of Growth & Partnerships

Jamie Tobias joined eSupport Health as Head of Growth & Partnerships in March of this year. In this new role, Jamie is focused on building relationships with MS Centers around the country, launching new marketing initiatives and providing overall advisory support to the organization. Before joining eSupport, Jamie was VP of Business Development at Section4, an online education startup founded by NYU Professor Scott Galloway. Before joining Section4, Jamie spent 9 years at NYU's Stern School of Business, most recently as Assistant Dean where she oversaw a portfolio of the school's most strategic global programs and relationships.  Prior to joining NYU, Jamie spent 3 years as Vice President of Business Development for Marquis Jet Partners (now NetJets) and held various positions at American Express managing large enterprise partnerships.

Lenny Teytelman, PhD

CEO & Co-Founder, protocols.io

Lenny is Chief Executive Officer and co-founder of protocols.io, a leading platform for collaborative research method development and sharing, leveraging web and mobile technology to create a global online community of researchers. The collaborative platform is used for sharing science methods, computational workflows, clinical trials, operational procedures, safety checklists, instruction manuals and more. Lenny holds a B.A. in Mathematics from Columbia University and a Ph.D. in Genetics and Computational Biology from the University of California, Berkeley. He was also a Postdoctoral Researcher at MIT.

Zongqi Xia, MD, PhD

Principal Investigator, Pittsburgh Institute of Multiple Sclerosis Care and Research

Dr. Xia is a Principal Investigator in the Pittsburgh Institute of Neurodegenerative Diseases & the Pittsburgh Institute of Multiple Sclerosis Care and Research. He is an Assistant Professor of Neurology, Biomedical Informatics and Bioengineering at the University of Pittsburgh. Dr. Xia holds a B.A. from Swarthmore College, MD and PhD from Case Western Reserve University, and a Master’s degree in Clinical Investigation from Harvard Medical School. Dr. Xia completed his Neurology residency at the Brigham and Women’s Hospital and Massachusetts General Hospital, and a post-doctoral fellowship at Harvard and Broad Institute. Dr. Xia's interdisciplinary translational research program leverages multi-stream data from patients and applies data science approaches to address clinically relevant questions in the field of multiple sclerosis and related disorders.

Brenda Williams, MFA

Executive Director, Human Resources at the Depository Trust & Clearing Corporation (DTCC)

Brenda Williams is an Executive Director at The Depository Trust & Clearing Corporation (DTCC) with over 25 years of experience in Human Resources. Brenda concurrently serves as Chief of Staff to the Chief Human Resources Officer and Global Head of Employee Relations. Within this role, she is responsible for leading HR strategic planning, providing oversight of human capital risk for the organization, and developing an integrated, global employment practices function. Prior to this role, Brenda led DTCC’s Learning and Talent Management team with responsibility for leadership development, learning solutions, talent/succession planning and organizational development. Before joining DTCC in 2009, Brenda held a number of HR leadership roles, including positions at Merrill Lynch, Bank of America and American Express. She is an active mentor and has a long history of supporting arts & education-related community initiatives. She holds a B.A. from Yale University and an MFA from Columbia University.

David Wennberg, MD, MPH

Board Member, Quartet Health

David is a board member and former Chief Executive Officer of Quartet Health, a technology company focused on patients with chronic medical and concomitant behavioral health conditions. The company's goal is to use technology to transform mental health through partnering with health insurers and providers to deliver an integrated model of care. Previously, David was Chief Executive Officer at High Value Healthcare Collaborative, a consortium of 15 healthcare delivery systems who participated in data collaboration. David has a Doctor of Medicine degree from McGill University and a Master's in Public Health from Harvard University.

Alexei Stoliartchouk, MS

CTO, CPO & Co-Founder of Protocols.Io

Alexei is Cofounder and Chief Technology Officer of protocols.io, a leading platform for digital respiratory academic research that leverages web and mobile technology to create a global online community of scientists. The collaborative platform is used for sharing science methods, computational workflows, clinical trials, operational procedures, safety checklists, instruction manuals and more. Alexei has expertise in leading the development process of complex technologies that help professionals share and discover life sciences from concept to production. Alexei holds a B.S. from the Moscow Aviation Institute and his Master's degree from the University of Memphis.

Victoria M. Leavitt, PhD, FAAN

Chief Scientific Officer (CSO)

Vicky is a neuropsychologist specializing in the psychological and cognitive symptoms of MS. For over ten years, Dr. Leavitt’s research has focused on symptoms that affect quality of life for people living with MS, including fatigue, cognitive impairment, depression, anxiety, and loneliness. She also studies neural network alterations in MS.

In 2018, Dr. Leavitt received a grant from the National Multiple Sclerosis Society to support a clinical trial of eSupport. With enough rigorous trial evidence supporting the benefits of online support groups, we hope to move from a world in which we recommend support groups to one in which we prescribe support groups.

Dr. Leavitt is an assistant professor in the Department of Neurology at Columbia University Irving Medical Center. She has received grants from the National Institutes of Health, the United States Department of Defense, and the National Multiple Sclerosis Society.

Vicky earned a Bachelor’s of Science in Human Development from Cornell University in Ithaca, New York, and received her Ph.D. from the City University of New York.

Ed Moed

CEO, Hot Paper Lantern

Ed is the Chief Executive Officer of Hot Paper Lantern, an agency that fuses marketing and communications with business consulting and technology solutions to help make brands more relevant. Ed is an industry veteran with more than 25 years of experience. He leads business strategy and provides overall direction to operations, finances, new services development, client services and new business. He is currently a trustee for his alma mater, Drew University, and has been on various other boards and advisory councils including Council of PR Firms, YJP, the Montclair Art Museum, Little Kids Rock and MyGoodDeed.org. Ed holds his B.A. from Drew University.

Phil De Jager, MD, MPhil

Director, MS Center, Columbia University Irving Medical Center

Dr. Phil De Jager serves as Director at the Center for Translational Computational Neuroimmunology and Multiple Sclerosis Center at Columbia University Irving Medical Center. He is also a professor in the Taub Institute for Research on Alzheimer's Disease and the aging Brain. His focus is on characterizing and targeting the neuro-immunologic component of neurodegenerative diseases. Dr. De Jager's work as a clinician-scientist is to apply modern methods of neuro-immunology, statistical genetics, and systems biology to the understanding of common neurodegenerative diseases such as MS. After graduating summa cum laude with a B.S. from Yale University, Dr. De Jager received a PhD in Neurogenetics from Rockefeller University and an MD from Cornell University Medical College, before completing his MMSc in Clinical Investigation at Harvard Medical School (HMS) and MIT.

Sean Cavanaugh, MPH

Former Deputy Director, Center for Medicare & Medicaid Services (CMS) under President Barack Obama

Sean is currently the Chief Commercial Officer and the Chief Policy Officer at Aledade, Inc., a platform that assists primary care providers such as independent practices, health centers and clinics, through offering data, analytics and regulatory expertise. Previously, Sean served as Deputy Administrator and Director at the Center for Medicare and Medicaid Services (CMS) under President Barack Obama. He has extensive expertise in the health care space and a deep passion for aiding those with disabilities. Sean holds a B.A. from University of Pennsylvania and Master’s of Public Health from Johns Hopkins Bloomberg School of Public Health.

Laura A. Kozak

LPC

As a Licensed Professional and National Certified Counselor, Laura has over 15 years of experience providing inpatient crisis care, clinical project management, and behavioral counseling for children and families. She recently served as a resilience coach in a clinical trial telehealth intervention for individuals with multiple sclerosis and their caregivers. She has a B.A. in Psychology, M.A. in Clinical Mental Health Counseling and Ed.S. in Counseling Services from Rider University. In her free time, Laura enjoys practicing self-care and wellness, which includes yoga, essential oils and spending time at the beach.

Amanda R. Cohen

MSOT

Amanda Cohen is an Occupational Therapist working with people who have neurologic impairments, helping them to recover and maintain the skills necessary for daily living. She assists in improving function, modifying lifestyle, and achieving goals to enhance overall quality of life. Amanda has training in group therapy, and values the support provided in that setting. She is a New Jersey native, now residing in Miami, Florida. Amanda holds a B.A. in Psychology, and received her M.S. degree in Occupational Therapy from New York University. For several years Amanda has led "Neurotango" classes, tango dancing as a therapeutic treatment for individuals with neurologic disability, to improve ambulation and functional mobility.

Robin Reyes

Chief Technology Officer (CTO)

As Chief Technology Officer, Robin oversees the information technology strategy and provides leadership on governance, risk, and compliance.

Robin brings over 15 years of technology leadership experience to eSupport Heath. In his previous role as Global Director of Information Technology, Robin was responsible for IT operations at Geotext—and later Lionbridge Legal—where he led the technology team in a broad range of functions to ensure the continuity of services and safeguarding of data for the world’s top law firms, financial institutions, and other leading enterprises.

Robin is recognized by ISACA as a CISM (Certified Information Security Manager) and holds a B.A. from the City University of New York.

An avid sports fan, Robin has developed a love for playing golf. He also ran the 2021 TCS New York City Marathon.

Joe Duncan

Chief Executive Officer (CEO)

Joe is the cofounder of eSupport Health and has served as its CEO since the company was formed in November 2019. He is a seasoned executive with over 20 years of experience in founding, building, and leading effective organizations, and whose counsel is sought out across a variety of businesses.

Since 2012, Joe has served as an advisor to the CEO of protocols.io, the leading digital repository for academic research. He led protocols.io’s initial seed round and continues to be actively involved as a trusted advisor to the company.

From 2015 to 2017, Joe served as General Manager at Lionbridge Technologies, where he established the Legal Division, following Lionsbridge’s acquisition of Joe’s company, Geotext Translations, Inc.

In 1997, Joe founded and served as CEO of Geotext, a multimillion-dollar business providing premium language services to global 100 law firms and major corporations. Geotext became the go-to translation company for many of the world’s most critical cross-border legal matters. At its peak, Geotext had over 120 full-time employees and 3,500+ contractors around the world. In 2015, Geotext was acquired by Lionbridge.

Joe holds a B.A. in English Literature, with a Minor in Political Science, from the University of Southern California and an M.F.A. from Columbia University. Joe enjoys reading, running, and hiking in the Adirondacks with his family. Recently Joe learned to surf which involves more wiping out than catching waves, but he enjoys the challenge.